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I’ve just been so busy…

16 Jun

I don’t know how many times I’ve had to say, “I’m sorry I haven’t called lately. I have just been so crazy busy….”

But it’s true. I’ve had very little time to get back to this blog. There is a certain section of my life that I am trying to keep a little private right now and I’m devoting time to it.

I’ve also got a boat load of work at work as usual and it keeps me busy.

It’s challenging to even have “me” time. I’ve been given orders to do more relaxing and it’s actually hard to find the time to do what I should be doing.

And I absolutely have to make a concerted effort on it, I know. This is not optional. Find ways to relax. It should be in the forefront of my head every day.

I’ll work on it.

Sorry I haven’t written. Too much going on right now. I’ll try to be better.

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Spending the weekend with N.

12 Jun

This might be the last weekend we have before he has to go back up North. He does own other office properties in other states.

He’s only going to be back 2 weeks this Summer. That’s all the chance I will have to see him. I hate it, but it has to happen.

That’s the problem with being in separate states. It’s hard.

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It’s shocking but not shocking…

10 Jun

I’m not trying to lose weight but my metabolism is just in overdrive.

I got on the scales today and I now weigh 111 lbs.

I used to weigh stuff like that in my 30s, early 40s and 20s. It seems to be going back to where it used to be whether I decide it should or not.

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Trying to get my numbers back in line…

09 Jun

The alarms went off, starting yesterday, and now I have the challenge of trying to figure out how to get the numbers back in line and where they should be.

I wish it were an instant process but it’s not.

You can’t program a human like you can a computer.

I am reinitiating the process for de-stressing.

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A day I did not need…

08 Jun

Usually when someone works with me, they pay enough attention to know that I don’t let things slip through the cracks. I’m as detailed oriented as it gets. That’s why I graduated 4.0 in my Master’s. I pay attention. I listen. I take notes. I communicate. Usually, they really appreciate the skill set and they don’t get greedy particularly when they were given a price break.

I recently asked a group of people, “Please do not stress me out for no reason. It’s unproductive.”

Then this morning I was chewed out over “items that were not done.” However, they were done. And I had issued written reports outlining all of that. No one read them but they felt they had a right to chew me out anyway.

I would say they don’t give a damn about anyone but themselves. And I had looked out for them. I find it particularly offensive because of poor planning on their part, last Thursday I worked from 9 a.m. to 11 p.m. to help them out. And this is what I get for gratitude? I will never do that again.

It made me very sorry that I passed up two opportunities last week by saying that I wasn’t interested. I think that was a huge mistake on my part. I should have listened and given them more consideration. Consider it a lesson learned.

I don’t need to be in a situation where people are causing me stress for no good reason.

The good news of the day was that I found out that my former clients did close their shop on Worth but there are plans to move somewhere else when this is over with. The landlord of the building got greedy and actually tried to raise the rent in the middle of this fiasco so they finally said, “enough.” Good for them. That landlord has had problems with getting greedy with the businesses on Worth Avenue. I think it would be sad to discover that that could be the reason why so many had to vacate during this time. Haven’t the merchants had enough between COVID and protests? When is someone going to give them a break? What did they do to deserve what they have to deal with?

I feel very badly for them.

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Even though it rained, it was another fabulous weekend…

08 Jun

The weekends have been so good, it’s getting to the point where I hate to see Monday morning roll around because that means the end of the weekend.

We had another dinner at my house Friday night and then on Saturday we went to Cafe Bouloud at the Brazilian Court Hotel in Palm Beach.

It’s only taken us 3 years and Pandemic to actually make this relationship happen…

Oh, but it’s so sweet and so good.

I think it was literally, about 3 years ago on one of our first dates we went to Cafe Bouloud. As we were sitting there Saturday evening, I could remember everything about that early date 3 years ago. I remember what I wore. I remember where we sat. I remember what I ate. I remember the lovely couple we talked to when we were leaving and what we said.

And wow, how things are different now. My clients then were a high end jewelry store on Worth and we were doing well. I am working on a different project now. This week, after 26 years in that location on Worth and 76 years in business, the lettering was pulled off the building. Three years ago, N. was still traveling around the world and barely in town.

I never thought I might be grateful for a Pandemic, but it required him to be stuck in Palm Beach county for a while and just a few doors away from me. Just add another disaster on to that (my brief hospital stay for a few days) and so what started as something casual 3 years ago suddenly had so much more meaning for both of us. And we finally managed to go from an occasional date into a real relationship and find something that’s worth trying to hold onto.

Sometimes blessings arrive in a way you don’t expect. And we certainly never expected the world to look like this right now.

I wore the black gown that I wore in Paris last summer. I’ve always loved that dress. It’s so elegant and classy. I was surprised that I could actually wear it. That it wasn’t too big. I am now 114 pounds as my metabolism seems to be in overdrive again. All the places he’s taken me are very, very nice. But honestly, it’s not about where he takes me, I just want to see him. It kind of doesn’t matter what we’re doing. I’m just as happy, when we don’t leave my house all weekend.

Today, I got to go to one of his office buildings and look at space where I’ve helped him pick out some furniture that’s arriving. I enjoy that kind of time together too. As I also did grabbing a coffee and walking the local shops (we did so safely). Even though it was pouring rain, I didn’t really care.

It’s his time that I value most. He’s so concerned about my health and my safety and where and how he takes me somewhere. I feel like it’s very genuine. It’s the kind of caring that’s not manufactured or fake. It’s authentic and very endearing. It’s also the mark of some very fine character.

If I stir at 2 a.m., he notices and he reaches over. That constant soft touch is a very special thing.

My friends are all wondering why I haven’t had time to call them. Now you know.

I am trying to enjoy every minute of this.

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The most unscrupulous bunch of jerks I’ve ever dealt with…

03 Jun

In all the years I’ve run the blog, I’ve never said, “Do not do business with….” But seriously and particularly if you’re a woman, do not do business with Gunther Volkswagen of Delray Beach.

These guys were just jerks. They totally reneged on what they agreed to do and this story is so not nice.

I had a car that broke down. After going through 3 batteries in six months, I knew it wasn’t it the battery. So I needed to have AAA tow the car somewhere. I’m not allowed to ride in an Uber because as you know I was recently in the hospital and that’s considered too risky for me. I believe the terminology is I have a condition “where you are considered compromised and need to limit your exposure.” No Ubers.

So I called the dealership where I’ve had my car serviced and asked them if I had AAA tow it, could they deliver the car back to me because I can’t take an Uber to the dealership to pick it up. I explained the whole thing. No problem they said. Then the employee said, “But we can’t take your car without a credit card on file.” So I gave her my card number.

After having the car for days, they called this morning to tell me it’s done. I said, “Great the cards on file, go ahead and charge it and deliver the car back.” The Service Manager agreed that they had agreed to bring the car back but then he says, “No one was authorized to take your credit card number because we don’t take cards over the phone. ” Great, so that means one of their employees just stole the number. I asked him to look into it. He wouldn’t do it. He took no responsibility for the employees of the dealership.

So then I asked, “How do you want me to pay for the car?” He sends an email with an upside down scanned paper form. I’m like, “You’ve got to be kidding, no one sends credit card numbers through email. That’s not secure.”

I don’t see why he couldn’t print out he form and bring it with him with the car and I would fill out and sign the form when the car arrived.

He refused to do any of the above and then he refused to give the car back. So basically they stole the car.

The police department says it’s not stolen until it’s paid for so they suggest that I send a friend with my credit card to pay for the car and move it off of their lot on onto their lot outside of the gate. Then we can go back at night and get the car. If the dealership refuses to release the car after it’s been paid for then it becomes another matter. I asked him to at least send me a form that was not upside down. He wouldn’t even do it.

I work during the day and I have a ridiculous deadline on a project right now (that’s a whole separate story). I don’t finish until after 6 p.m. The dealership decides it closes at 5:30 now. Meanwhile, I have a doctors appointment Thursday morning and no car.

These guys are jerks and they are wrong on so many levels. I will NEVER, EVER do business with this dealership again or anything that is owned by Joe Gunther because his employees have acted in such an unscrupulous manner and don’t give a damn. Now they have refused to deliver the car at all. I asked to speak to him. Do you think the people who screwed this up wanting me talking to him. No. I’m quite sure he’ll never call me. You need to fire them all.

All I want, is to pay for my car and get my car back. I don’t need this kind of stress and aggravation from a bunch of low lifes. And if you’re a woman or a potential customer, you should run as far as way and as fast as possible from this dealership. They will not do what they promised to do. I agreed to pay that outrageous sum of money to fix the car because I thought the car was being delivered back to me. There’s another dealer in West Palm and I’ve been a customer of theirs before and they will now be getting my business.

The repair on the car was $1200.

What a poor representation of someone’s brand. I seriously hope your bad Karma comes back to get you.

But I am serious about please do not do business with any Gunther dealership.

Honestly, this is why Visa has fraud cases and they should terminate the merchant agreement with anyone who tries to accept credit card payments in an unsecure way and who will not investigate their own employees who try to take a credit card number for purposes of theft. We should we as the consumers, pay for this garbage? I setup credit card processing all the time for clients. It’s not expensive. Your average cookie shop can afford it let alone a car dealer.

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Another fabulous weekend…

01 Jun

I made a nice dinner and served it in the dinning room on Friday evening. Candles and wine and it was a very lovely evening.

Then Saturday N. and I went to Vero Beach because Space X was launching the rocket.

We went to a hotel that is owned by Gloria Estefan.

Of course we wore masks and I had my little white gloves and a straw sun hat. But the table we had had a terrific view and there were no tables next to either the left or right of us. The closest person was over 30 feet away.

When we walked around Vero Beach, one lady commented that I was the epitome of Southern Charm. Everyone has thought the white gloves are a great idea because like the masks they are washable. I keep 10 pairs around.

Then we came back and had dinner at a cute little French restaurant where we had the entire restaurant to ourselves. The owner wore a mask, as did I. When she walked away, I could take the mask down and N. and I had a very lovely evening.

He’s reminded me I need to master Stress Management 101. So here’s how I spent my Sunday. He approved of that choice.

I can remember after Joe died, N. tried to talk me out of ever flying a plane again. And I don’t know that I will ever see the inside of a cockpit again.

But when you’re born the second the launched the rocket to the Moon, you are destined to be fascinated with things that fly and there is no greater freedom than to be above the clouds.

But for now, we watch someone else fly.

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Excited about today…

30 May

I am going to Vero Beach with N. to watch the Space X launch. This one is a historic launch.

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I’ve discovered I’m like a high performance sports car…

27 May

I have figured out it’s my speed that controls the blood pressure. My brain thinks far faster than most people.

I had to make a web site in one day today. I did it. But then the blood pressure (on two medications) shot to 161/103 after it was normal and has been doing pretty well.

I’m like a sports car. If you want to go fast, she can go fast, but the engine runs hot.

It’s my speed that controls the BP. I’ve always had tremendous speed.

Remember we found nothing else – no blockage no nothing. Nothing wrong with my diet or exercise.

It’s my brain activity that triggers this.

Mmm.

I took the third medication. That’s the one we use when it goes “hot.”

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A former client didn’t make it through this…

25 May

One of my former clients who was in business for 76 years appears to have not made it through this crisis.

I had ocassion to walk down Worth Avenue at night and the store was completely torn up and empty.

I haven’t worked with them in 8 months but it looks like things derailed before the crisis. When I got home I had a look. Among the many things I made for them, the expensive web site had been worked on by someone who’s not at my level and they broke the style sheets and made a mess out of the front. The client had completely lost their rank with Google compared to holding many pages of rank during the 3 years I worked on the site. I put the previous site in place.

It is sad to see a business that has operated for 76 years go under. They were a fixture in Palm Beach.

I am sorry to see all the merchants who have suffered on Worth Avenue and not made it through this time. My thoughts are with you.

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There’s not going to be much to say this week…

20 May

I have a frustrating situation to deal with in regards to work this week and I’d rather just have no comment.

If I’m not happy, I usually don’t say much.

It’s just a reality that you can’t control certain factors and people and sometimes people or situations have the ability to just screw up your work.

Patience is a virtue and I have a lot of it but I wonder if I didn’t give too much of it.

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It was such a great weekend…

18 May

Nick came and stayed again with me this weekend. He’s really brining my blood pressure down. I had five normal readings today.

He makes me stay in bed a lot longer than I usually do on the weekends. And I’m not complaining. I’m getting enough rest and relaxation and I’m not used to all that attention but it’s very, very nice. I can’t even begin to put into words how I feel about him after everything he’s done. There are not many men who would do what he’s done. Most would run the other way. He is very special, there’s no doubt about that.

I actually got to get out of the house this weekend because we took his convertible up A1A to Palm Beach and walked Worth Avenue to find out what happened to the merchants. I’m sorry to see so many closures but you can understand how it happened.

The drive, the fresh air and the company was incredibly relaxing.

I went for a very long exercising walk tonight and I plan to swim tomorrow night.

Life is getting better and I am trying to savor every moment of everything that is sweet right now.

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The picture that really changed everything…

14 May

My body has lost the ability to regulate it’s own blood pressure. I swing very, very high to low – like a ping pong ball. It happens without cause, without reason and without warning.

I had a really bad headache and I knew my blood pressure was high because a nurse had taken it. I was starting to get some angina.

Nick lives in my neighborhood and we often run into one another when I walk and he’s out walking. We used to go out. I think the world of him. I always have. But he owns businesses in other states and he taken another woman out and I found out and told him that I don’t date men who are dating other women. I knew he traveled the world a lot but the thought of another woman hadn’t entered my mind until then. We had had a lot of extraordinary dates and a lot of fun. The Breakers, The Four Seasons, The Hard Rock Hotel Spa, the Ferrari Cavallino, Flagler’s, Brazilian Court Hotel, Miami and of course his favorite St. Ambrose. There were lots of beautiful gowns and fine wine. A sophisticated gentleman with excellent taste in clothes, manners and the best education and intellect. Never been married and no children. We seemed to be so evenly matched. But not wanting to get my heart broken, I said what I said.

A few months passed and this Coronavirus thing exploded. And as his businesses were forced down to a minimum (he provides luxury offices for people in Palm Beach, New Jersey and New York) my business was ramping up in the crisis. I was in high gear dealing with it all.

I ran into him the day after the nurse had taken my blood pressure and I wasn’t feeling well. He went out and bought the wrist blood pressure reader with an app for my phone and we started tracking it and you could clearly see, I had a problem. I had already been COVID tested and that wasn’t it. I have friends that find this really hard to wrap their brain around because I am so physically fit and only 50 with a good diet. Maybe if you see it, you’ll understand. Here’s some of the screenshots:

The next day got scarrier and that’s when I had to go to the Emergency Room and then spent a couple of days in the hospital.

After discovering that the irregular heartbeat was a problem, Nick bought the hand held EKG reader that would talk to the phone. With those two devices, he equipped me with more medical technology than a third world country.

When I was afraid to go sleep, because I almost died in the hospital when I went to sleep, Nick came down and slept next to me. If I cried out or moved a certain way, he was awake immediately wanting to know if I was alright.

He made an observation that my condo was too hot at night. “I’ll get up and turn it down for you.”

He was surprised I didn’t have a programmable thermostat. I told him, “I ran over budget on the electrical in the renovations so there were some items that came off the list.”

He said, “I’ll take care of it.”

The next day a wifi thermostat that talks to the phone arrived. You can adjust your thermostat and set schedules from the phone. This morning, the company Nick hired to install it installed it.

He’s really done a lot to help me and if he hadn’t cared enough to get me to use the reader, we wouldn’t have know the extent of the problem, and if I had stayed home, that might have been disastrous. He really saved me by gettng me to see I had a bigger problem.

There’s not enough words to say how you feel about someone who’s put so much effort into keeping me above ground.

Right now is not a safe time to go to restaurants for an experience. Friday night I want to make him an appreciation dinner for all that he’s done. I have a beautiful table with a lake and golf course view. He enjoys that room. I’m thinking about a salmon patty topped with a fried green tomato with bearnaise sauce and asparagus with bearnaise sauce. A nice bottle of prosecco and a delicious dessert.

I want him to know how much I appreciate everything he’s done and how important all this was to me. And I’m glad that he’s back for a second chance with us because I always thought we were good together.

Maybe it takes something like this for people to see what’s really important in life.

We decided to do a little experiment to see what would happen if I skipped the medication for five hours. I did and acted just like a ping pong ball that wasn’t controlled. I need that medicine in order to regulate my systems.

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First real signs of progress…

11 May

My numbers are starting to get a lot more acceptable as we track my blood pressure and heart. I think we’re on the right path. I’ve had a couple of days in a row that look good compare to the entire month’s readings. I’ve also felt better the last couple of days. We’re on the right track.

I am doing everything I can to bring the stress level down. It seems to be working.

————————

It was just a better day overall. I had a decent day working on projects.

I felt like cooking dinner again. I made brussel sprouts baked in french onion soup, mushrooms, garlic and parmesan cheese and then I made a chicken stir fry rice. I used very minimal sauce. I had a cup of Chamomile Lavender tea with Agave.

Nick stopped down to check on briefly. Then after dinner I went for a swim in the pool. I like swimming at night because I don’t have to use sunscreen and the mood is very relaxing. There’s no one around. It’s a pretty night view of the golf course, the lake and the lights in the Palm trees and around the cabana house. It’s one of my favorite things to do.

Then I come back and turn on the heat lamps with a hot shower. It’s all very relaxing.

They lifted the ban on pools on Monday and part of Palm Beach started reopening today.

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I don’t know what I would have done without him

10 May

When all this started Nick had brought down a blood pressure cuff that had an app on my phone that tracked and analyzed everything.

I already knew I had a problem but I didn’t understand the extent. I never would have known that I had that much of a problem with out Nick and that device. It was tracking 200’s for days. Before I went into the hospital, we had decided it would be ok if he came down. I had just passed a COVID-19 test and he’s very, very careful.

We sat at the dinning room and looked at all the numbers.

The whole time I was in the hospital, he checked on me. I passed another COVID-19 test in the hospital. And when I got out of the hospital and started to started to struggle, he stepped in. He ordered a medical grade EKG device that I could hold in the palm of my hand that talks to my phone. And when my numbers started plummeting at night and it was getting scary, he came down to sleep next to me and try to calm down the fear.

His stepping in made a huge difference this weekend. The numbers are starting to look like we are making progress with the medication. I can’t even begin to tell you how grateful I am to him. I think we’ve known each other 3 years now. I’ve always had a thing for Nick but I can tell you my heart is way beyond “thing” for Nick after everything he’s done.

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It’s not easy. I try to make it look easy, but it’s just not.

07 May

I have moments I want to throw up. I have moments where I get dizzy. I have moments where I get a screaming headache. The mood doesn’t control the blood pressure. The blood pressure controls the mood. It can go high and suddenly I am wired and I am fighting it.

The today out of nowhere I feel like my heart is going to pop out of my chest it is beating so fast. So I hook up the reader and now it’s recording irregular heart beat all day.

It’s frustrating when you’re having a hard time getting control over this. It’s not what I’m doing, it’s not what I’m eating that’s causing any of this.

I’m working a full day through all of it. I just keep plowing through. It’s challenging. Our hope is that this is going to level off in a few weeks and it takes a few weeks for the 3 medicines to really work.

And I am anxious to get the IV med out of my veins that they put in because it’s horrifying over what each medicine is actually designed to do. They explained none of this to me when they gave it me. Patients have rights and one of those is a right to know what you injected into me. They threw every right out the window. I have such a distrust for them now. This was not a good experience. They were poor communicators who treated me like I had no rights.

It’s a little difficult for me when I have to celebrate the health care works online and in social media for their work with COVID-19 (I post this stuff all day long for a client) and yet you damn near killed me. And they did not listen to what the patient is saying and it was important.

It’s not an easy thing to let go of when i have to continue to deal with this.

I am looking forward to the day when this calms down. I don’t need this kind of challenge. I hate feeling unsuccessful and I feel unsuccessful at this right now.

I am hoping I feel more successful at a large scale email marketing campaign that I am running for a client for the next month. I spent today building it out.

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It’s shocking. I’m still trying to wrap my head around it.

06 May

I did go in for the appointment with my doctor who had obtained all the records so we could make sense out of what happened and what is going on.

Her four years of medical records on me clearly show that I did not have a single health issue that would have lead someone to think that this would happen. Good diet. Good exercise. No issues.

The evidence provided by the hospital clearly shows that what caused the crisis was the combination of drugs that the ER doctor ordered. He admits it and he defends it because I was in hypertensive crisis when I arrived.

They clearly see by looking at all the readings that have been taken every day, that I have a problem, but they do not know what’s causing it, even after all the tests. They did not test for the blood clot. They can’t find anything and things like this don’t just happen. And the blood pressure remains volatile. The last two nights it’s dropped way lowered than normal and then to the extreme during the day. Stuff like this does not just happen. It’s a roller coaster.

I am sleeping with a medical alarm within reach because I had less than 2 seconds in the hospital before I wasn’t capable of doing anything. When it goes low, it’s very dangerous.

So I am on the most high powered blood pressure medicine they make. We are using 3 during the day. This either has to get better, or the cause is eventually going to show up.

I was COVID tested twice and both are negative. My symptoms do not match that disease.

I was never afraid to go to sleep at night before. Fear was not exactly part of my makeup. But I can tell you that death is not a peaceful thing. I wasn’t under any sedation. When my body started shutting down, it wasn’t exactly what I thought would happen. It’s not peaceful, it’s a fight. And everything starts to close in.

This is the best I can do with what I’ve got right now. There’s where I’m at with it. There are residual issues from what happened in the hospital that I hope will go away with time. I don’t know what to say. It was a traumatic experience. I’m trying to move past it. I wish we had more answers and I wish I knew what comes next.

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Dealing with the roller coaster…

05 May

Because they are using medication to try to regulate my blood pressure, it’s creating a roller coaster. I’ll go from high in the day to a low at night.

The low blood pressure at night is what is particularly dangerous for me. You wake up feeling dizzy, you’ve got the shakes, you feel sick to your stomach. They told me after an event like this that I would have some anxiety and that’s normal.

I am really hoping that this evens out soon.

I have a doctor’s appointment today to talk about all this.

I am making a concerted effort to stand up and take a few minutes to walk around so that we won’t have problems with my legs from sitting at a computer for too long. I’ve spent my life in front of a computer and it caught up with me.

Anyone who works in the computer industry should make a point to get up and take breaks. If you don’t, you have no idea how much you are endangering your health.

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I think the original problem is a blood clot

03 May

I’m laying in bed today because I have sore spot on the back of my right calve. This is the region that went crazy with with I thought was a Charley Horse at 1 a.m. in the hospital. I now think that was a blood clot. I feel something small, like half a pea size in the vein.

I started felling nausea last night. So I’m going to be safe and hang out in bed today.

RA causes blood clots, which can cause heart attacks. They tend to happen more to people who sit all day. I work on a computer all day. I am definitely going to start to get up and take more breaks and move my legs during the day.

This is all frustrating for me. It’s not how I want to spend my weekend. But it is what it is.

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How am I doing?

01 May

A little better today than yesterday. I did however, work both days.

I’m learning to deal with life post heart attack. I’m tired but I think that will go away in time. It’s a priority right now for me to get enough sleep.

I have to monitor the BP all day and now there’s 3 different kinds of meds for the day. I have to watch that I don’t over exert myself. I did walk this evening with a friend, just in case.

Obviously, there are changes that come to your life after this. Right now it’s my goal not to be the one in five people who have a second heart attack in the first five years. I have a friend who’s mother had a heart attack at 50 and she didn’t have her second until 83. That would be more my goal, I think.

At any rate, it’s coming along. I’m going to take this slow and steady but back to a normal life. I wish right now I had a housekeeper and a cook.

I talked to someone who really knows this stuff. They asked, “What time did you have the heart attack?”

“3 a.m.”

“Oh you were right on time, most heart attacks happen between 2 and 4 am.”

I had gone into the hospital at 4 pm.

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I’m home now…

28 Apr

The fiasco that happened the other night in the hospital was because the blood pressure medicine they gave me was too much. It dropped it all the way and created a bad situation.

I wanted to come home. We were doing tests and then having to repeat tests because I had fallen when that happened. Everything looked stabilized and I was getting an infection from the number of times they went into my arm. I’ll do better at home and it’s time for pill medication anyways.

They gave me a portal where to access my records. I logged in and see that they listed the diagnosis as Acute Coronary Syndrome (ACS), more commonly known as a heart attack.

There were no signs of blockage. That’s the update.

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Still in the hospital at JFK

27 Apr

I am still in the hospital at JFK. This week has been much harder than I ever would have guessed.

I was battling what I thought was a sinus infection for weeks. Finally, I called and had a telemed appointment and got a prescription for an antibiotic because this wasn’t getting any better. I had a huge headache and chest congestion from the sinus. I woke up with my blood pressure so high I could hear it in my ears and I thought it was the penicillin.

After the round of antibiotics. I still had a huge headache and chest pressure. So my doctor sent me for a COVID test. It was negative. But the nurse had put a blood pressure cuff on me and it was high. She warned me that any increase or pain I should go to the ER.

I mentioned it to a friend. He dropped off a blood pressure cuff and it came with an app for iphone that would track my readings and interpret them.

Saturday was the first day I had it on. It consistently registered blood pressure between 195 and 202 all day and everyone had a warning – Hypertensive Crisis. I called the doctor on call and was given a prescription for blood pressure medicine. I took it Saturday night and Sunday morning.

Sunday I decided to find out if I could bring it down. I stayed in bed all day. I was able to get it down a little bit. But then that intense headache got really bad and the first time I heard a crackle or two it began to scare me. So I went to the ER around something like 4 p.m.. They put a Nitroglycerin patch on. We started tests. I waited for hours to see if it would bring it down. It didn’t. After a while it went up. Then they brought in blood pressure medicine.

They told me they were admitting me to the hospital. About 1 a.m. I was given a room and moved upstairs. We took a reading and it was not as high as earlier in the ER – the top number had come down to 166. I decided to try to sleep. At 3 a.m. I woke up knowing something was really wrong. I felt like I was going to throw up and my legs from the knees down felt really funny. Because I was going to throw up, I tried to get up and go to the bathroom in the room. I was up about a second when I totally collapsed and fell. The team of the floor came running in. I was trying to tell them I couldn’t see. I couldn’t hear and my throat was closing up. My reading this time had bottom out at something like a 50. My heart wasn’t pumping blood and things were beginning to shut down. I broke out in a cold sweat and was in shock. The administered the medicine that gets your heart going again and puts the blood pressure back up. We took the Nitro patch off in case the dose had been too high or on too long. But you would think that if the Nitro patch was lowering it, it would have done it between the hours of 4 p.m. and 1 a.m.

After I stabilized, I realized I was becoming a yo-yo with this blood pressure as they sent off for an emergency cat scan at 3 in the morning.

Long story short, they aren’t letting me go home until we can stabilize this and bring it down. I am hoping that might be tomorrow. They are still looking for the reason for all of this. Some tests take time to come back but some we know already. Yes, my body was in really good shape and with a good diet. This is not from a blockage, we know that already. But they’ve already warned me they don’t always find the reason but this stuff doesn’t happen for no reason so there is reason. That’s all I really know. I know that you have to get high blood pressure under control or you do serious damage to your body. I’m aware of that. My BMI index is exactly where it’s supposed to be. I’m not diabetic. I don’t have high cholesterol. I work out. I eat right. Three months ago I had physical where there was literally nothing that wasn’t where it was supposed to be.

This headache is absolutely tied to the blood pressure. When it crashed, the headache went away. Shortly after it came back as that blood pressure is now high again.

I will let you know when I get out of the hospital. I am hoping tonight is a better night than last night. There’s not much I can do about this.

Did you know these hospital beds flip completely upside down? They flipped me last night to get all the blood to rush to my brain so there wouldn’t be damage in the crisis we were having. I did not know they could that. The work the response team did on me was quick and fast and they knew what they were doing. If this had happened at home, I wouldn’t be here today. I know that for sure.

Stay safe and be well my friends.

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No posts this weekend…

24 Apr

The good news is the COVID is negative.

The bad news is I still have a big problem with the blood pressure.

There is a possibility that this will wear off over time if it was all the allergic reaction to penicillin.

Although I had the headache before I took the penicillin. I did read an article last night about that the drugs come from China and they’ve had issues with toxic ingredients. I wonder sometimes if the “allergy” is really a bad ingredient.

Because I’ve been cooped up for weeks, I haven’t had access to the things that traditionally lower my blood pressure – massage, gym, basketball, golf, etc. I would expect my blood pressure to be high, but not this high.

At any rate, no computers this weekend. I’ll post next week.

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Honestly, I don’t know and I can’t afford to stress about it…

23 Apr

I had to make an emergency medical visit this evening.

Remember how I told you my blood pressure was so high the other day I woke up with my nose bleeding?

It’s really high today. I found out that I have another four days before that penicillin leaves my system even though I’m not taking it anymore. I got checked out and they did a COVID test and they are thinking that it’s COVID or I have all the signs of someone who’s going to have a heart attack – chest pressure, headache, sky high blood pressure. They told me that if I get any kind of chest pain to go to the Emergency room. I’m showing all the symptoms except for that one. For those of you that don’t know me, I am in really good physical shape. I am someone who works out and exercises.

I’ve been cooped up without enough exercise that’s for sure and that’s what lowers your blood pressure. I haven’t gone anywhere in weeks except I had to go to Publix to pick up a prescription and that was before they were telling us to wear masks. I had asked about delivery and they told me they didn’t do it. Shortly thereafter, one of their employees was diagnosed with COVID. A few days ago I get  a text that says, “if you’re sick let us know.”

The COVID test comes back in 3 to 5 days they said. The nurse doing the checkout told me that people could have been exposed over a month ago and it’s just now turning into something. So today starts my 14 day clock, although I was doing it anyways.

They gave me an inhaler for the crazy reaction I had the day before and this morning.

Well, we shall see.

Either way, I don’t really care for those options. That’s today’s news – not the kind I like that’s for sure.

On the work side, today was a highly productive day and I like the results and the direction of everything I’m creating. I’ll tell you more about that later. I’m working on things I enjoy.

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My Lilly Pulitzer Mask…

21 Apr

In Palm Beach County we’re required to wear masks. So I had some Lilly Pulitzer masks made and also masks in my favorite solid colors.

This is Mask 1. I have another Lilly being made because you have to wash them every day. There’s no way I am blowing this photo up. I will give you the “fashion show” as they arrive.

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I know more than I did yesterday…

20 Apr

I did a test today that I didn’t want to do but I need to get down to the bottom of this.

I think there are 2 things going on here. One is the reaction to penicillin which is going to take several days to get out of my system. And I’ve actually had that my whole life but we seldom have ever had to use penicillin. I actually thought I outgrew the allergy. I still had the headache and some bleeding, but less. My blood pressure is coming down. That was like scary, unsafe blood pressure and I know it. I woke up with it loud enough to hear in my ears and my nose was bleeding. That’s not good. I put my Apple Watch on which can do like an EKG and monitor the heart rate.

But here’s what I was afraid of and I tested it. I didn’t take any allergy medicine this morning. I didn’t have any nasal congestion and my lungs were clear. What I took yesterday was wearing off. I opened up my slider doors for an hour. It was really windy today. Within an hour, I had a very serious allergic reaction. It was like a faucet that wouldn’t shut off – my nose, my lungs – everything filled up with fluid. I shut the doors and took an antihistamine. An hour later, I was close to normal.

I have never had allergic reactions that severe. My brother however, has had severe asthma and allergies his entire life.

I am very clearly, highly, highly allergic to something outside right now. It’s so odd to me that the reaction wasn’t nearly as bad a year ago. But I did read where people can get adult onset asthma at 50. I am beginning to think that’s what this is and that it’s triggered by something putting of pollen.

I just can’t get over what a serious reaction it is.

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I think I figured it…

19 Apr

The whole problem should be gone in a few days.

When I was a kid I couldn’t take penicillin because it made my nose bleed. We did Augmentin a few times as an adult and it was ok.

But I just read a long article about unusual side effects of Azithromycin and unusual bleeding is one of them.

I think that’s the culprit. It’s the antibiotic.

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Here’s how it is today…

19 Apr

My symptoms do not match what they report for the Coronavirus. I don’t have a respiratory issue. I don’t have a fever. I’m actually running at 96, which is low.

What I have is a sinus cavity above my eyes that is bleeding and causing a massive headache in my face.

I did some research yesterday. Allergies can cause bleeding. Allergy medicines can cause bleeding. High blood pressure can cause bleeding. Exercise normally lowers blood pressure but we’ve pretty much have been prohibited from anything in Palm Beach County.

I know my blood pressure was high yesterday because I could hear it in my ears. I normally have allergies. I decided yesterday to discontinue all allergy medication to see what happens. I got out the facial steamer last night and steamed. I have a small vaporizer that I ran in my bedroom again last night.

This morning, I still woke up with a headache. I used saline to rinse and it was full of blood. But I’m going to try going down this path for a few days in case it’s being caused by one of the medicines. Being pent up indoors has not been good for this situation.

I am such a clean freak because I have allergies. I have zero carpeting in my home and allergen bags on pillows and mattresses. Now the plus side is that we had a hard rain yesterday. A hard rain will take the pollen out of the air. Last week if I had my dining room door open, I could write my name on the glass table after only a few hours. We have had such a dry spell in Florida that allergens build up in the air. And all this may have been something that I normally fight off but the steroids might have put me in a position where I can’t.

I’m staying in bed another day because I am shaky this morning. I suspect that blood pressure is still too high. I hate having a headache like this but I’m not sure what I can do about it.

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I don’t know what to make of it…

18 Apr

I have been on azithromycin for nine days. There’s one day left. The antibiotic does not seem to be doing anything for the problem and I’m still not sure what the problem really is.

I woke up with a huge headache this morning and when I blow my nose it’s all bright red blood. That’s clearly why I have the headache.

I don’t know what to say. I thought the antibiotic would kick the problem.

I’m doing something I never do. I’m staying in bed today. I’m just going to try giving it more rest and walking around raises my blood pressure and I think I need to keep it down. I will follow us with another telemed appt this week.

We had lowered my immune system with steroids that were used for a neck injury. I’m just wondering how long this is going to stay lowered. This has been going on for a month. I am getting fed up with it. I don’t know what could have possibly caused this. I don’t do drugs but I do take allergy medicines.

It’s storming and raining today in Florida. We do actually need the rain.

That’s my Saturday.

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I’m in a holding pattern, what can I say…

17 Apr

Monday through Friday, I work from 9-6 at home. I worked like crazy this week, because you know that’s my nature anyways.

The weekends are the usual stuff at home.

I’m in a holding pattern as you know. I’m waiting to see which direction this all goes. That’s the update for today.

Happy Friday.

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I actually slept last night…

16 Apr

I slept all the way through the night. I feel better today than yesterday. A few more nights of sleep and I’ll be in a better position.

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Update…

15 Apr

I solved one of the technical problems on my list. Check.

I have friends in which I need to clarify this – I do not think that what is going on with me is COVID-19. Neither do my doctors. They think it’s the RA and a side effect of the neck procedure. Which is just acting up temporarily.  Today was more proof in my mind. The antibiotic kicked in and started breaking things up in my chest. Everything I coughed up is very wet. I’m not used to getting anything. This wouldn’t of happened had we not had to lower my immunity temporarily. I honestly don’t know how long that part lasts. They put the corticosteroids (steroids) into my neck when we killed the nerves and a risk of that kind of medication is infections.

My sinuses had been draining for weeks. Some of that had to be going into my chest. I should be as good as new in a week. I don’t care for the side effects of an antibiotic but I think it’s working. I’ll be glad when I can sleep right again.

I’ve had a neck injury for over 20 years. I’ve had this procedure done many, many times. This is the first time I’ve ever had any repercussions of the steroids like an infection. I’ve had it add fullness to my cheeks, which I hate but that’s life.

I gave it some thought and here’s where I think we pushed it too far. Four weeks ago we did 2 vertebra. A month before we did two vertebra. Those two procedures were too close together. In the past there was always six months in between procedures. So I think I had the injections two months in a row. I don’t remember how many nerves we killed or how many times you go in. In past procedures I know it has averaged between 5 and 10.

Overall, I think we’re moving in the right direction to get control of this.

But I’m still working a full, long day every day. No issue there.

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My stress levels are up…

13 Apr

It was a complicated day.

First I dealt with technical problems and 3 outside companies with 3 different opinions about what each of them should do. I like it when it’s within my power to solve the technical problem. Right now, it’s not really within my hands. Some of this is out of my hands until I can get effective communication flowing between all the parties.

But we really have to solve this problem and soon.

Then there was the moment when we figure out what’s really going on with me. Right after my neck procedure and when all this started, I had a sudden drastic change. I’ve now talked to my regular doctor and neck doctor and today we had the lightbulb moment and figured it out. I was, I think obvious to all of us that everything was going back to the RA. What’s going on is highly unusual for me. But what I didn’t know, was that during the neck procedure, they gave me steroids and they lowered my immunity. And then my doctor asks, “And didn’t you just make a big shift at work from the company being in the office to now adapting to running everything from people’s houses?”

“Well, yes.”

He thought it was fair to say that the sudden shift and the extra effort now required in dealing with this COVID crisis now constitutes “stress.” And I did not know that that lowers your immunity even further.

Everyone seems to be in agreement that it would be dangerous to treat the RA right now. Pain in my bones is one thing. I knew that I would also feel it in my heart muscle. I think it’s obvious that I am strong enough to take it for a period of time. But yes, I wake up at 2 a.m. But what drove me crazy (and yes, it’s caused by the RA) is the chronic allergies/sinus problem for over 4 weeks. It’s a sign of infection if it goes on that long. So today I’m starting an antibiotic. I literally had not driven my car in weeks and weeks. I will have to go out to a pharmacy tomorrow who does my items and does not have drive through or delivery. We’re working on next time changing all that. But I’ll be going in full hazmat practically to pick it up.

In case you don’t know RA is a genetic disease that disproportionately affects white women. I probably inherited it from my grandmother’s genes . She had it but lived into her 80s. I don’t think I want to live past that anyways. The problem with untreated RA is that you never get sick and you have a super immune system that kills everything including yourself. But the medications used to treat RA are very dangerous and they put you in a very compromising position. I have known people to die from the medication. It’s a disease with an impossible answer right now. Most people never realize I have it. Even people who have known me for years. And in case your wondering, RA is not contagious.

His advice to me today is not simple, “Lower your stress. Right now your body does not like it.”

Easier said than done. I hope to have more control over it by the end of the week. But I just saw a long process I have to learn today that was not something I look forward to do doing but I see where it’s necessary.

I’m just going to have to tackle these items and solutions have to be found or not solving them is what will really cause the stress and I know it.

Enough said. But now we know why these “allergies” have beat me up for a month. In order to breathe, I’ve been taking Afrin every day on top of allergy medicine and you are not supposed to do that. But if I didn’t I would of had bronchitis for sure. Keep in mind you are talking about someone who never gets sick. You see why this was so shocking to me? When RA acts up it causes congestion because it produces fluids in the body and reactions to things. So if allergies are 10 times worse, they are.

So I had to have something interesting to shift my mind off of stress this evening. Here’s what I came up with. I read about the Moron of the day

https://apple.news/A3EihoQaaSte2lp-WWG2sbA. You should never take anyone up in a fighter jet who doesn’t want to go. He accidentally ejected himself from a fighter jet. This is as bone head as the local guy who just crashed his plane and died last week. You know what they found? The plane had no fuel. He took off with both tanks bone dry. I’m not kidding. https://www.sun-sentinel.com/local/palm-beach/boynton-beach/fl-ne-fatal-boynton-crash-ntsb-report-20200409-hdlg25xiarblhlkm45chht5ree-story.html This just happened. Bone heads. Seriously.

I’m sorry but I can’t stop laughing over the fact that this 64 year old was deathly afraid of the fighter jet and yet he ejected himself and parachuted to the ground. I bet you wish you were back in the plane now….

The account of the whole incident written by The San Jose Mercury News has to be the funniest thing I have read all year. I laugh myself into tears every time I read it. https://www.mercurynews.com/2020/04/13/man-who-never-wanted-to-ride-in-fighter-jet-accidentally-ejects-himself/

Please Lord, don’t let me die from some stupid move. How embarrassing. It’s like the Wile E. Coyote move. It’s bad enough that my obituary might say, “She liked high heels, fashion, Lilly Pulitzer, airplanes and fighter jets. She was a different kind of woman.” LOL. It’s true though. I’m just not cut from the same mold.

In terms of the update on the Coronavirus and COVID-19 in Palm Beach County. You might have heard by now that Palm Beach is the second single largest point of deaths in the state. I find that interesting considering that Atlantis, which is in the county, has no cases. Palm Beach is second only to Miami.

The government of Palm Beach issued something that wasn’t very smart. Where I agree that we all need to be wearing masks when we go to the grocery store. They old people not to wear the N95 mask. They don’t seem to consider that people like me who have re done real estate own them because they are also used in construction. I’m going to use what I already own. But just to be fun, I am having someone make a Lilly Pulitzer cotton mask and I can overlay that one. Dammit, we are going to make this fashionable. This is Palm Beach!

I also have plans to revive in fashion the while gloves. Why you ask? Because women will not touch their faces if they they wear white gloves. When my mask and gloves arrive, I will model them for you. Actually, I’ve ordered masks made in pink, blue and green because you know you have to wash them. Remember, I Create Memorable Experiences With Style.

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They came for Easter dinner…

12 Apr

They came for dinner. They just didn’t want to be dinner…

Say hello to my friends…

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